Ashley’s Story

Ashley has Apert’s Syndrome, which requires her to travel from Houston to Dallas for care from a specialized team of doctors. Of the 4 specialists she saw on a recent trip, only one is willing to work with the STAR Kids program for Ashley’s continuing care. The other three are unable to agree to the onerous terms and conditions required by the managed care organizations. The expensive medications prescribed by this team will also no longer be covered under STAR Kids because the providers will not be considered in-network. Ashley will require multiple surgeries in the future and her family does not know how they will provide for Ashley’s future needs.